{"id":25094,"date":"2025-03-06T17:05:49","date_gmt":"2025-03-06T17:05:49","guid":{"rendered":"https:\/\/www.dementiauk.org\/?page_id=25094"},"modified":"2026-03-24T16:19:59","modified_gmt":"2026-03-24T16:19:59","slug":"supporting-employees-affected-by-dementia","status":"publish","type":"page","link":"https:\/\/www.dementiauk.org\/information-and-support\/dementia-at-work\/supporting-employees-affected-by-dementia\/","title":{"rendered":"Supporting employees affected by dementia and their carers"},"content":{"rendered":"<p>As an employer, supporting an employee with dementia requires empathy, awareness, and a clear understanding of your <a href=\"https:\/\/www.dementiauk.org\/information-and-support\/financial-legal\/\">legal<\/a> responsibilities. Making reasonable adjustments and fostering an inclusive workplace culture can make a significant difference to an employee&#8217;s wellbeing and ability to remain in work.<\/p>\n<p>Employees who care for a person with dementia will also need understanding and support to help them manage their work and caring responsibilities.<\/p>\n<h2>What to do if your employee has dementia<a id=\"what-to-do\"><\/a><\/h2>\n<p>When an employee discloses a <a href=\"https:\/\/www.dementiauk.org\/information-and-support\/specialist-diagnosis-and-support\/how-to-get-a-diagnosis-of-dementia\/after-a-diagnosis-of-dementia-next-steps-checklist\/\">diagnosis of dementia<\/a>, managers should approach the situation with empathy and care. This will help the employee feel supported and avoid any misunderstanding about how their diagnosis may affect their employment.<\/p>\n<h3>How to discuss a dementia diagnosis with your employee<\/h3>\n<p>Top tips for responding to your employee&#8217;s diagnosis:<\/p>\n<ol>\n<li><strong>Thank them for sharing<\/strong>: acknowledge the courage it took for the employee to disclose their diagnosis and thank them for their openness. Remember that this is likely to be a difficult conversation for them.<\/li>\n<li><strong>Normalise the discussion<\/strong>: treat it like a conversation about any other medical issue. Let the employee know that your perception of them as a person has not changed as a result of their diagnosis. Reassure them of your support, including putting in place reasonable adjustments to help them in their role.<\/li>\n<li><strong>Reflect and gather information<\/strong>: you do not need to have all the answers about next steps immediately. Tell the employee that you will reflect on what they have shared and get back to them. Consider discussing the situation with your human resources (HR) Team, if you have one. Make sure you are informed about your legal duties and your company&#8217;s policies around sickness and disability.<\/li>\n<li><strong>Ask about their needs<\/strong>: find out what the employee is having difficulty with at work, and what they would like to happen to make their role easier.<\/li>\n<li><strong>Maintain their privacy and confidentiality<\/strong>: ask them if they want their colleagues to know about their diagnosis or not. If they do, find out if they would like to share the news themselves or would prefer you to do it.<\/li>\n<li><strong>Remember that each situation is unique<\/strong>: open communication with the employee is crucial. By providing support that is specific to their individual needs, you can create a positive work environment for employees with dementia.<\/li>\n<\/ol>\n<h2>How might dementia affect an employee?<a id=\"affect\"><\/a><\/h2>\n<p>Dementia is the umbrella term for a group of illnesses that, over time, cause damage to the brain and its functions. There are over <a href=\"https:\/\/www.dementiauk.org\/information-and-support\/dementia-types\/\">200 subtypes of dementia<\/a> and everyone affected by the condition will have their own experience, but it primarily affects thinking, memory and communication. These issues may make work feel more difficult for the employee and result in distress, embarrassment, and a loss of confidence.<\/p>\n<p>Dementia is a progressive condition, so while initially, a person with dementia may be able to continue to work with the right support, over time, work will become more challenging and overwhelming.<\/p>\n<h3>Changes in behaviour and communication<\/h3>\n<p>Dementia affects everyone differently, but you might notice some changes in behaviour in an employee with dementia. For example, they may react with frustration or distress if tasks do not go to plan.<\/p>\n<p>They may also have problems with <a href=\"https:\/\/www.dementiauk.org\/information-and-support\/living-with-dementia\/tips-for-communication\/\">communication<\/a>, such as struggling to follow a conversation or find the right words.<\/p>\n<h3>Difficulty with routine tasks<\/h3>\n<p>An employee in the <a href=\"https:\/\/www.dementiauk.org\/information-and-support\/about-dementia\/stages-of-dementia\/early-stage-dementia\/\">early stages of dementia<\/a> may struggle with tasks that they previously did not. They may:<\/p>\n<ul>\n<li>have difficulties with concentration and orientation<\/li>\n<li>struggle with problem-solving and <a href=\"https:\/\/www.dementiauk.org\/information-and-support\/financial-and-legal-support\/mental-capacity-and-decision-making\/\">decision-making<\/a><\/li>\n<li>make uncharacteristic mistakes at work<\/li>\n<li>have problems with communication, such as finding the right words<\/li>\n<li>struggle with literacy and numeracy<\/li>\n<li>experience changes in personality and behaviour that affect their work, eg reacting with frustration or distress if tasks do not go to plan<\/li>\n<li>have problems with timekeeping and meeting deadlines<\/li>\n<\/ul>\n<h3>Withdrawal and changes in social interaction<\/h3>\n<p>A person with dementia may gradually withdraw from conversations and socialising. This can be a response to the growing awareness that certain things have become more difficult \u2014 for instance, losing track of conversations or struggling to find the right words. Overstimulating environments, such as busy or noisy rooms, can also cause distress and prompt a person to retreat.<\/p>\n<p>It is also common for people with dementia to suffer from depression and anxiety, which may cause a person to become quieter or more withdrawn.<\/p>\n<p>\u201cSteve also failed some training at work which was unlike him \u2013 he had never failed anything before in his whole career. That really knocked his confidence. It sent him into a depression, and people at work started to notice that he wasn\u2019t himself.\u201d<\/p>\n<p>&#8211; Tracy, whose husband Steve lives with<a href=\"https:\/\/www.dementiauk.org\/information-and-support\/young-onset-dementia\/what-is-young-onset-dementia\/\"> young onset dementia<\/a><\/p>\n<h2>How to support an employee that has dementia<a id=\"support\"><\/a><\/h2>\n<p>Many people with dementia continue to work after their diagnosis. This may be necessary financially, especially as younger people with dementia may still have commitments like a mortgage or rent and dependent children. As an employer, there are many things you can do to support them.<\/p>\n<h3>Creating a supportive workplace culture<\/h3>\n<p>It is important to foster relationships where employees feel comfortable discussing their needs and challenges. There can be a stigma associated with dementia, but talking openly about it with the employee and listening to their experiences can help to combat that. Accessing dementia awareness training for yourself and other staff can also help people understand the condition and create a more supportive environment.<\/p>\n<h3>Dementia training and awareness for staff<\/h3>\n<p>Training employees in dementia awareness is crucial to providing better support for employees and customers with dementia. It can help to:<\/p>\n<ul>\n<li>improve service quality<\/li>\n<li>reduce <a href=\"https:\/\/www.dementiauk.org\/information-and-support\/living-with-dementia\/dealing-with-stigma\/\">stigma<\/a><\/li>\n<li>improve communication<\/li>\n<li>promote an inclusive environment<\/li>\n<li>ensure services are accessible<\/li>\n<li>empower employees<\/li>\n<li>build confidence<\/li>\n<li>develop advanced skills<\/li>\n<\/ul>\n<p>To find out how we can support you with dementia training for your organisation, please email <a href=\"mailto:dementia.work@dementiauk.org\">dementia.work@dementiauk.org<\/a>.<\/p>\n<h3>Health and safety considerations<\/h3>\n<p>While some people with dementia may be able to remain in their current role for some time, others may find their diagnosis has an immediate impact. For example, a supermarket employee may be able to continue in their position with adjustments, but a builder who works at height and is having balance problems may find their diagnosis compromises their own safety or that of others.<\/p>\n<p>If you are unsure whether it is safe or appropriate for the person to continue in their role, please seek professional advice. This could be from your HR Team, if you have one, <a href=\"https:\/\/www.business.gov.uk\/campaign\/recruit-with-jobcentreplus\" target=\"_blank\" rel=\"noopener\">Employer Services at Jobcentre Plus<\/a> or <a href=\"https:\/\/www.acas.org.uk\/\" target=\"_blank\" rel=\"noopener\">Acas<\/a>.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>As an employer, supporting an employee with dementia requires empathy, awareness, and a clear understanding of your legal responsibilities. Making reasonable adjustments and fostering an inclusive workplace culture can make a significant difference to an employee&#8217;s wellbeing and ability to remain in work. Employees who care for a person with dementia will also need understanding [&hellip;]<\/p>\n","protected":false},"author":6,"featured_media":0,"parent":25091,"menu_order":0,"comment_status":"closed","ping_status":"closed","template":"","meta":{"_acf_changed":false,"_relevanssi_hide_post":"","_relevanssi_hide_content":"","_relevanssi_pin_for_all":"","_relevanssi_pin_keywords":"","_relevanssi_unpin_keywords":"","_relevanssi_related_keywords":"","_relevanssi_related_include_ids":"","_relevanssi_related_exclude_ids":"","_relevanssi_related_no_append":"","_relevanssi_related_not_related":"","_relevanssi_related_posts":"","_relevanssi_noindex_reason":"","footnotes":""},"class_list":["post-25094","page","type-page","status-publish","hentry"],"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO Premium plugin v27.0 (Yoast SEO v27.3) - https:\/\/yoast.com\/product\/yoast-seo-premium-wordpress\/ -->\n<title>Supporting employees affected by dementia and their carers - Dementia UK<\/title>\n<meta name=\"description\" content=\"Our Dementia at Work Team on supporting employees and customers who are affected by dementia.\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/www.dementiauk.org\/information-and-support\/dementia-at-work\/supporting-employees-affected-by-dementia\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Supporting employees affected by dementia and their carers\" \/>\n<meta property=\"og:description\" content=\"Dementia UK is a charity that provides Admiral Nurses for families affected by dementia. 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